Really sorry to hear this. It must turn your life and the family life upside down. Percarditis is serious I believe. Sounds as though you may end up with a defibulator even though you are very young. As I understand it, that option would take care of your problem. Or is there a downside to putting in the defib? Do you have any idea when the docs going to make a decision?
Sending along hugs and good wishes.
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“Laugh as much as you breathe and love as long as you live.”